APA Handbook of Intellectual and Developmental Disabilities

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Format: Display
Pub. Date: 2020-12-15
Publisher(s): American Psychological Association
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This comprehensive, interdisciplinary handbook presents the latest research in the study, assessment, treatment, and understanding of intellectual and developmental disabilities.  
The past five decades have resulted in dramatic breakthroughs in the understanding of intellectual and developmental disabilities (IDD). Editor-in-Chief Laraine Masters Glidden and her editorial team provide an overview of the historical foundations of the field of IDD as well as up-to-date material on clinical diagnosis, assessment, interventions, and treatments for such conditions. 

It goes on to address legal, ethical, and educational issues; and other social issues that affect the lives of people with IDD, including family impact and adjustment, relationships and parenting, spirituality, residential and caretaking services, maltreatment and criminal justice issues, stigma and ableism, health, and aging. 

Chapters address the etiology and treatment of specific conditions (including Down syndrome, fragile X syndrome, other genetic and chromosomal conditions, autism spectrum disorder, acquired brain injury, cerebral palsy, and fetal alcohol spectrum disorders) as well as functioning in multiple domains and throughout the lifespan. Contributing causes to IDD are explored within various contexts such as culture, race, ethnicity, and socioeconomic status. 

Author Biography

Laraine Masters Glidden, PhD, Editor-in-Chief, is a distinguished professor emerita in the Department of Psychology at St. Mary's College of Maryland. She earned her BA from Mount Holyoke College in 1964, going on to pursue graduate study in experimental psychology, including research in classical conditioning and learning and memory. She earned her PhD from the University of Illinois in 1970.  

Dr. Glidden has maintained an active research, teaching, and administrative career over the past 50 years. Grants from the National Institute of Child Health and Human Development (NICHD), the National Institute of Mental Health, the National Science Foundation and other organizations helped to fund her research, including the longitudinal Project Parenting Study, funded by the NICHD for 25 years. 

Dr. Glidden’s research, writing, editing, and series editing work has resulted in the publication of one authored book and 17 edited books; additionally, she has published 20 book chapters and 79 peerreviewed articles and book reviews. She has received multiple awards and recognitions for her contributions to the field of intellectual and developmental disabilities, including The Arc Distinguished Research Award in 2008, an appointment as a Global Scholar of Special Olympics International in 2011, and the Edgar A. Doll Award for Lifetime Achievements in Intellectual and Developmental Disabilities from APA Division 33 in 2015. 

Leonard Abbeduto, PhD, Associate Editor
, is the director of the MIND Institute, the Tsakopoulos-Vismara Endowed Chair, and professor in the Department of Psychiatry and Behavioral Sciences at the University of California, Davis. Dr. Abbeduto’s research is focused on the development of language across the lifespan in individuals with intellectual and developmental disabilities and on the family context for language development. Dr. Abbeduto has published more than 200 articles, chapters, reviews, and books on fragile X syndrome, autism, Down syndrome, and child development. His program of research has been funded nearly continuously by NIH since 1985. Dr. Abbeduto has received numerous awards, including the Emil H. Steiger Award for Distinguished Teaching from the University of Wisconsin-Madison; the Faculty Stewardship Award from the UC Davis; the Enid and William Rosen Research Award from the National Fragile X Foundation; and the Edgar A. Doll Award for Distinguished Research Contribution from APA Division 33. 
Laura Lee McIntyre, PhD, Associate Editor, is professor and head of the Department of Special Education and Clinical Sciences and director of the Prevention Science Institute at the University of Oregon. Dr. McIntyre's research involves early identification and treatment of childhood developmental and behavioral problems, with an emphasis on the multiple systems of care that support children (e.g., families, schools, health care). Her research has received funding from the Eunice Kennedy Shriver National Institute of Child Health and Human Development; the National Institute of Mental Health; the National Institute of Disability, Independent Living, and Rehabilitation Research; and the U.S. Department of Education/Institute of Education Sciences. Dr. McIntyre is a past president of the American Psychological Association’s Division on Intellectual and Developmental Disabilities/Autism Spectrum Disorder (Division 33) and currently serves as the president of the American Association on Intellectual and Developmental Disabilities.  

Marc J. Tassé, PhD, Associate Editor, is a professor in the Department of Psychology and the Department of Psychiatry and Behavioral Health at The Ohio State University, and the director of the Ohio State Nisonger Center, a University Center for Excellence in Developmental Disabilities. He has more than 30 years of research and clinical experience in the fields of intellectual disability (ID), autism spectrum disorder (ASD), and other related neurodevelopmental disorders. Dr. Tassé has been involved in the development of a number of standardized assessment scales for people with ID/ASD, including the Diagnostic Adaptive Behavior Scale, Supports Intensity Scale for Children, Supports Intensity Scale for Adults, Nisonger Child Behavior Rating Form, and the Quebec Adaptive Behavior Scale. His publications include more than 150 articles in peer-reviewed journals, book chapters, and books. His work has been recognized by the American Association on Intellectual and Developmental Disabilities (AAIDD; Exceptional Service Award: 2007, 2009, & 2011) and the APA (Division 33’s John W. Jacobson Award). He is a past President of the AAIDD (2012-2013).   

Table of Contents



 Volume 1. Foundations 


Part I. Origins and Overviews 

1. Historical Foundations of the Field of Intellectual and Developmental Disabilities 

James W. Trent, Jr. 

2. Intellectual Disability, Developmental Disabilities, and the Field of Intellectual and Developmental Disabilities 

Robert L. Schalock and Ruth Luckasson 

3. Legal, Ethical, and Social Issues Affecting the Lives of People With Intellectual and Developmental Disabilities 

Katherine E. MacDonald, Micah FialkaFeldman, Alison Barkoff, and Molly Burgdorf 


Part II. Causality and Variation 

4. Epidemiology of Intellectual and Developmental Disabilities 

Maureen S. Durkin and Eric Rubenstein 

5. Behavioral Phenotypes and Genomic Testing: Scientific and Societal Implications 

Elisabeth M. Dykens 

6. Down Syndrome 

Robert M. Hodapp and Deborah J. Fidler 

7. Fragile X Syndrome and Associated Disorders 

Leonard J. Abbeduto, Angela John Thurman, Laura del Hoyo Soriano, and Jessica Klusek 

8. Chromosome 15 Syndromes Associated With Intellectual and Developmental Disabilities 

Charlotte DiStefano and Shafali S. Jeste 

9. The Autism Spectrum: Diagnosis and Epidemiology 

Melanie Pellecchia, Kelsey S. Dickson, Sarah F. Vejnoska, and Aubyn C. Stahmer 

10. Acquired Brain Injury: A Developmental Perspective 

Lisa Jacobson and Gwendolyn Gerner 

11. Cerebral Palsy: Epidemiology, Neurobiology, and Lifespan Management 

Eric M. Chin, Tara L. Johnson, and Alexander H. Hoon, Jr. 

12. Fetal Alcohol Spectrum Disorders and Other Teratogenic Conditions 

Sarah N. Mattson, Lauren R. Doyle, and Leila Glass 

13. Linking Poverty and Developmental Disabilities 

Theodore D. Wachs and Kathleen S. Gorman 

14. Culture, Race, and Ethnicity and Intellectual and Developmental Disabilities 

Sandy Magaña and Sandra B. Vanegas 


Part III. Assessment, Diagnosis, and Labeling 

15. Theories and Measurement of Intelligence 

Randy G. Floyd, Ryan L. Farmer, W. Joel Schneider, and Kevin S. McGrew 

16. Theories and Measurement of Adaptive Behavior 

Marc J. Tassé and Giulia Balboni 

17. Intellectual and Developmental Disabilities and Mental Health 

Yona Lunsky, Peter E. Langdon, Brianne Redquest, and Jane Summers 

18. Attitudes, Stigma, and Ableism Toward People With Intellectual Disability 

Kristin A. Dell’Armo and Marc J. Tassé 


Volume 2. Clinical and Educational Implications: Prevention, Intervention, and Treatment 

Part I. EvidenceBased Practice and Treatment 

1. Early Intervention for Children with Intellectual and Developmental Disabilities 

Laura Lee McIntyre, Megan Kunze, Hannah Barton, and Mathew Luehring 

2. Applied Behavioral Analysis and Intellectual and Developmental Disabilities 

Wendy Machalicek, Allaina Douglas, Christine Drew, Hannah Barton, Buket Erturk, and Tasia Brafford 

3. Psychoeducational Approaches to Instruction of Students with Intellectual and Developmental Disabilities 

Michael L. Wehmeyer 

4. Special Education Law: Programming and Placement 

Mitchell L. Yell, James C. Collins, Mickey Losinski, and Michael A. Couvillon 

5. Special Education Curriculum and Pedagogy 

Susan R. Copeland and Megan M. Griffin 

6. The Autism Spectrum: Intervention, Treatment, and Services 

Amanda C. Gulsrud and Patricia Renno 

7. Diagnosis and Management of Cerebral Palsy and Other Types of Pediatric Brain Injury 

Kathleen M. Friel, Claudio L. Ferre, and Andrew M. Gordon 

8. Controversial Treatments, Therapies, and Theories in Science and Professional Practice in the Field of Intellectual and Developmental Disabilities 

Richard M. Foxx 


Part II. Lifespan Issues 

9. Family Impact and Adjustment Across the Lifespan: Parents of Children with Intellectual and Developmental Disabilities 

Laraine Masters Glidden, Frank J. Floyd, Richard P. Hastings, and Marsha R. Mailick 

10. Family Impact and Adjustment Across the Lifespan: Siblings of Individuals with Intellectual and Developmental Disabilities 

Gael I. Orsmond and Kristin A. Long 

11. The Transition to Adulthood for Individuals with Intellectual and Developmental Disabilities 

Leann Smith DaWalt, Julie Lounds Taylor, and Marsha R. Mailick 

12. Intellectual and Developmental Disabilities and the Criminal Justice System 

J. Gregory Olley and Ann W. Cox 

13. Achieving Competitive Integrated Employment for Individuals with Intellectual and Developmental Disabilities 

Paul Wehman, Carol Schall, Lauren Avellone, Alissa Molinelli Brooke, Valerie Brooke, Jennifer McDonough, and Holly Whittenburg 

14. Residential Services for Adults with Intellectual and Developmental Disabilities 

K. Charlie Lakin, Amy S. Hewitt, Heidi J. Eschenbacher, and Jerry W. Smith 

15. Reconsidering Sexuality, Relationships, and Parenthood for Adults with Intellectual Disability 

David McConnell, Marjorie Aunos, Laura Pacheco, and Lyndsey Hahn 

16. Spirituality and Supports for Individuals with Intellectual and Developmental Disabilities and Their Families 

Erik W. Carter 

17. Maltreatment of Individuals with Intellectual and Developmental Disabilities: A Lifespan View 

Linda Hickson and Ishita Khemka 

18. Health of Individuals with Intellectual and Developmental Disabilities: A Lifespan View 

Susan M. Havercamp, Rose E. Nevill, and Jill Crane 

19. Aging in Individuals with Intellectual and Developmental Disabilities 

Tamar Heller and Lieke van Heumen 

20. Summary and Future Directions: Where We Have Been, Where We Are, Where We Are Going 

Laraine Masters Glidden, Leonard J. Abbeduto, Laura Lee McIntyre, and Marc J. Tassé 



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